Axver ([info]axver) wrote,
@ 2008-05-16 23:37:00
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Current music:'Release' by Anathema
Entry tags:eyesight, life, vision

The thrills of low vision
My big news for the week is: I now have a cane.

Finally, I think my vision is being taken seriously. Some of you may not be aware of my vision impairment. I am an albino; although many people don't realise it, albinism is not simply a skin condition - it affects the eyes (and sometimes solely manifests itself in the eyes), due to a lack of the pigments that aid in sight. Accordingly, I have a stack of eye conditions, including astigmatism, nystagmus, photophobia, and strabismus, along with just simply being shortsighted. In controlled clinical conditions, I test as nearly legally blind, but I'll be going to an opthalmologist soon and we'll see if I get declared functionally legally blind or anything like that.

For now, after meeting with Vision Australia, I have a cane. I thought I would just receive an ID cane, which is used to indicate that you have low vision and little else. However, in something I didn't expect, the Vision Australia representative thought I would be better served by the long cane. I'm so used to my vision not being taken seriously, by everyone from my father to my teachers back in school (especially in New Zealand) and various others who have come into and out of my life. There seems to be this assumption of "oh, you aren't totally blind, you can see, so you must be OK", or "it can't be that bad". I lived in a comfortable environment at home with Mum, where if I had any problems she was there to assist, and I made my adjustments - including using the computer in a way that is quite frankly terrible for my posture, but at least I can read the bloody thing. Even when I lived in Brisbane, Luke was around and Mum visited weekly. Since moving to Melbourne, I have become abundantly aware that I am probably pushing myself more than I should, excessively straining my eyes, and basically trying to live like a normally sighted person when I'm not and can't. In the last couple of months, I think people have really started to take that seriously. No longer is it "oh, your vision's bad - but you've got your glasses and you aren't blind". Now, I've got a cane and maybe I am functionally legally blind.

It's been interesting using the cane for the last week. I don't like the assumption that I'm totally blind, and I am nervous about some of the looks I'm sure to get when I'm taking photos. People just don't seem to understand the dynamics of low vision. Just because you have a cane doesn't mean you have no vision; I have some vision, but it isn't spectacular by any stretch of the imagination. One thing I have noticed straight away from using the cane is that without it, I unconsciously walk with my head tilted at the ground and my eyes focused on what's a few steps immediately in front of me. Using the cane for that, I can look straight up and ahead. I hope this will do something about my shocking posture. And maybe, as reluctant as I am to do so, I should enlarge text on my computer so I can sit further back. I hate large text, I really do, since it looks so n00bish and frankly isn't that ideally comfortable to read due to how many more line breaks there are to follow, but I don't want to end up with a bad back by the time I'm 40 or anything.

Anyway, back to writing boring essays for university ...



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[info]harmonybear
2008-05-16 02:31 pm UTC (link)
Commenting to distract you from essays! Bwahahaha... Er.

Screw the looks - start messing with their minds and break out a book *coughs*
I had the same thing - and STILL encounter it - but you get used to the idiots (or get used to hiding the fact you're very seriously considering impaling the bastards but then how do you explain you need another cane).

As for text enlarging - I found I did it a little at a time before finding something somewhat comfortable - still not as large as I should have it :-P but better than 12 pt.

When I go see an opthal next (and I really, really, really should get onto that *sighs*) I'm going to tell them to test me outside - the world is not nice little controlled conditions.

Oh and gotta tell you - before I got Prince I was using a cane around uni - had one daft woman comment to me AS I USED IT TO GET DOWNSTAIRS that she thought I wasn't blind because I had glasses ... would love to know what she thought the cane was for.

I need more snacks and less rambling here :-P

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[info]axver
2008-05-17 03:18 pm UTC (link)
Well, your distraction didn't work too much last night, but it is tonight! Goddamnit this work is becoming dull.

One day, we should go out, you with Prince and me with my cane, and play I-spy very loudly on the tram. The looks would be priceless.

I must admit I like the look of 12 point font, aesthetically. To be able to read the screen sitting upright with my back against the back of my chair, I have to hit CTRL++ in Firefox five times. Not sure what size that produces. 36 point? Only thing is, then I'm reading out of my distance part of the bifocal as I'm too far back for the lower reading part to work, and that's uncomfortable! Plus it fucks with the formatting.

Even testing outside has its problems though. I mean, if they tested me looking in the direction of the sun on a bright afternoon, I won't see ANYTHING. Looking the opposite direction? Probably almost as well as clinical conditions. With the sun to my side, it'd be a mixed bag.

And how could that lady not be familiar with the whole stereotype of blind people with glasses? WTF to her on all levels, really. Some people are daft.

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[info]karinny
2008-05-16 03:40 pm UTC (link)
The post directly above this one on my friends page has a jittery animated icon. It was very difficult to read the word nystagmus and not have my eyes drawn upwards :)

I had a legally blind patron at the last library I worked at - she used to get funny looks *all* the time as she'd check out her books. We laughed about it.

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[info]axver
2008-05-17 03:20 pm UTC (link)
Hee. I'm lucky in that my nystagmus is quite controlled. My mother did plenty of eye training with me when I was little, which lessened the effect of the nystagmus considerably. Though when I get tired, it becomes more apparent.

And haha, yeah, I can see that happening to me too ...

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[info]corianderstem
2008-05-17 06:02 am UTC (link)
Wow!

Cane rhymes with train ... you have to come up with some quip to toss around now, you know.

I am Axver. Axver with a cane! I love a good train and being in Spain. And the rain in Spain falls mainly on the plain.

Um. Don't mind me. I'm up way too late.

But seriously, yeah - add me to the list of dumbos who had no idea how poor your eyesight was.

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[info]axver
2008-05-17 03:22 pm UTC (link)
Haaa. "Axver with a cane on a train in Spain travelling over a plain as the day does wane and the evening light is my bane ..."

And you have an excuse, what with being on the other side of the Pacific and not having seen me walk into poles or perfect the art of falling up stairs!

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[info]fugebabe8819
2008-05-18 05:20 am UTC (link)
Don'tcha just hate it when parents don't take your health seriously? The only thing my dad takes seriously is my epilepsy, and considering I'll grow out of it, and am trying to get contracted in ROTC, I wish he wouldn't. That I should be wearing contacts/glasses? That I need to see a dermatologist? That I should be on BC? naaaah. Not important.

Independence is glorious. I love going away for university. I'm visiting for two weeks and I wonder how I got along here at all.

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[info]axver
2008-05-19 11:57 am UTC (link)
My father is pretty much the same way, except I can't think of anything he does take seriously. Vision, he just doesn't get how bad it is and I'm not too bugged by that in isolation. But his favourite is to refer to my allergies as all in my head. I wonder if the vomit that follows eating an egg is just a figment of my imagination too ...

Melbourne's awesome. Even in Brisbane, I didn't really feel very independent, but Melbourne is so easy to get around, and quite frankly, even if I could drive I wouldn't waste time owning a car, so I'm no less independent with my shitty vision than I am if I had normal vision. Going back to Queensland is like stepping back in time, and losing most of my independence. I avoid it whenever possible.

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[info]fugebabe8819
2008-05-20 05:19 pm UTC (link)
I think Dad only takes it seriously because I've spilled coffee on his whiteish carpet a few times because of partials. Heh, whoops...

It's funny, because Bowling Green is just now getting a bus system, but I've never used it. Whenever I need to go somewhere off-campus any one of my friends are more than willing to give me a lift, no chore, no groans, nothing. Here, god, it's like pulling teeth to get friends to even hang out. They're like elderly shut-ins already. I wouldn't own a car if I could get away with it. Way too expensive.

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Found you from an old post you made about 4 years ago.
[info]the_zaniak
2008-05-18 03:44 pm UTC (link)
Hello! You mind if I add you? Your writing is interesting, and it looks like you post about topics I have no experience with, so from a "let's learn about new things" angle I'm interested as well.

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Re: Found you from an old post you made about 4 years ago.
[info]axver
2008-05-19 11:53 am UTC (link)
G'day! Yeah, sure, feel free to add me. :)

And you found me from a post I made 4 years ago? Dear god, I hate to think what I was writing back then.

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